Our mission is to expose and remedy corruption in the Probate Court of Cook County, Illinois. We assist, educate and enlighten families of the dead, the dying, the disabled and the aged to better understand their rights in order to protect themselves from the excesses of the Probate Court of Cook County. ProbateSharks.com is dedicated to networking the human element of people to people. We join together in reforming the corrupt Cook County Probate Court system.
“The ‘Greatest Generation’ is the greatest generation to exploit.” This quote by Chayo Reyes, a retired Los Angeles Police Department specialist in elder fraud, from a DVD titled “Saving Our Parents” appropriately depicts increasing, yet often unreported, activities targeting today’s elderly and their families.
The assets of older Americans are being looted via actions in which probate instruments such as powers of attorney, wills, trusts or guardianships are used to gain control of property. These actions evolve into an involuntary redistribution of assets (IRA) as ultimate financial resource distribution becomes contrary to the asset owner’s intentions.
Family members are sometimes IRA perpetrators, but non-family individuals can come into an older person’s life with equally damaging results. It can be a premeditated effort or an “opportunity knocks” act. And don’t ever think the elderly don’t exploit each other! A senior woman with no money, an inflated sense of entitlement and a life expectancy of another 10 years or more can easily become a financial predator. The exploited elderly person may not understand (or live to see) the actual IRA action. Instead, honest and responsible people in the target’s life may be left to deal with the aftermath and even become secondary targets — especially if they are heirs/beneficiaries for whom assets are rightfully designated and/or are obstacles to an IRA practitioner’s ultimate success.
Expensive, prolonged legal entanglements as well as intimidation and harassment are common tools used to pressure heirs/beneficiaries to cede rights of inheritance if outright looting is not easily accomplishable.
Because the pool of those willing to exploit the elderly is endless, it is important to be aware of places and venues where today’s predators search for potential victims. The list might be surprising, but remember: The guise of community respectability, professional credibility, even enhanced morality or religiosity can be important entry points into the life of a predator’s next mark. With that, here is a list of where the looters and the poachers stalk prey:
Senior centers
Government-sponsored lectures (especially through departments/agencies specializing in eldercare, aging)
Civic groups (Kiwanis, Rotary, etc.)
Churches, synagogues
Retirement communities, homeowners’ associations
Support groups (church-sponsored and otherwise)
Medical facilities, nursing homes, assisted living facilities
Consultations with “professionals” (lawyers, caregivers, accountants, social workers, etc.)
Any places that cater to an older clientele (gyms, dance clubs, libraries, restaurants, etc.)
Anecdotal evidence tells of probate judges attending meetings at senior centers and other community venues ostensibly providing seniors with “prepare now for future needs” information. A forum apparently frequented by individuals with Connecticut probate experience depicts a system in which public officials troll for prospective cases to meet the challenge of operating in a state with numerous probate courts constantly vying for justification of their court’s existence. And though Connecticut residents may experience more visible aggression in these pursuits, similar reports are heard across the country.
Meetings sponsored by anyone — government agencies, churches, civic groups, support groups, whomever — can be beneficial for those looking to poach property of the unsuspecting. An IRA practitioner might be the featured speaker or he/she might be in the audience looking to “befriend” unsuspecting marks. Gatherings put on by seemingly respectable organizations can be viewed as safe havens fostering greater trust and openness to those with whom personal contact is made — a point well known to poachers on the prowl. Support groups can be especially rich in potential targets as the group’s commonality (grief, caregivers, divorce, etc.) may increase their emotionalism and vulnerability — another point not lost on IRA stalkers.
A 2005 Los Angeles Times series titled “Guardians for profit” reported:
Conservators find clients by sponsoring breakfasts at senior centers and networking at legal luncheons. Nursing homes call when residents become too addled to pay the rent, wanting a conservator to write checks for them. Hospitals call when patients have outlasted their insurance, hoping that a conservator will move them somewhere else.
Conservators, also known as guardians, use probate procedures to gain control over an individual’s personal liberty and property. Though the Times articles focus on California, these cases are not uncommon elsewhere.
Stories regarding IRA cases within Florida’s probate system were detailed by the St. Petersburg Times in a 1994 Pulitzer prize-winning series called “Final Indignities.” And though published 21 years ago, the same stories are heard today — from Florida and almost every other state.
IRA predators are a fact of today’s life. Due to the wealth transfer getting ready to occur in the next 15 or so years, IRA actions will likely skyrocket. People think proper estate planning will protect them — wrong! People think they don’t have enough assets to be a target — wrong!!
There is no inoculation from the threat of IRA. There is no avoidance of being a potential target. This information is not offered as a broad-based indictment of all organizations and entities, but awareness should exist on the part of those hosting and attending community events. Knowledge of today’s predatory landscape and recognition of the places haunted by asset looters and property poachers will provide an upper hand. And as forewarned is forearmed, stay alert! –Lou Ann Anderson
Editor's note: Alice R. Gore, a disabled 99 year old ward of the Probate Court of Cook County was "dispatched" by dehydration at her nursing home. Why is this not considered murder? Lucius Verenus, Schoolmaster, ProbateSharks.com
Patient in So-Called “Vegetative State” Knew Doctors Were Dehydrating Him to Death
by Wesley J. Smith | Washington, DC | LifeNews.com | 11/12/13 1:18 PM
We dehydrate to death helpless people in this country because they have a catastrophic cognitive impairment. Advocates for dehydration say it is just medical ethics, the withdrawal of the medical treatment of tube feeding. (Now, there is even a lawsuit to compel starvation by withholding spoon feeding–not a medical treatment!)
Dehydrating helpless people to death was once unthinkable. Then, in the 80s, bioethicists began advocating withdrawing tube-supplied food and fluids. And so it came to pass. Advocates for dehydration started by claiming it should be reserved strictly for those who are unconscious. They have, of course, broadened the dehydration caste since. But recent scientific studies have now also shown that many supposedly unconscious patients aren’t unaware at all.
And now we learn some are paying attention to their surroundings! From the Cambridge University report:
A patient in a seemingly vegetative state, unable to move or speak, showed signs of attentive awareness that had not been detected before, a new study reveals. This patient was able to focus on words signalled by the experimenters as auditory targets as successfully as healthy individuals. If this ability can be developed consistently in certain patients who are vegetative, it could open the door to specialised devices in the future and enable them to interact with the outside world.
And get this:
These findings suggest that some patients in a vegetative or minimally conscious state might in fact be able to direct attention to the sounds in the world around them.
If this is true of other patients, imagine the horror of hearing doctors and family discussing removing your food and water. Imagine the pain of the actual event!
Actually, we know what that is like. Kate Adamson, thought mistakenly to be unconscious after a brain stem stroke, underwent abdominal surgery with inadequate anesthesia. She was then left unfed (but hydrated via drip) during the healing process–and it was more painful than the sensation of being cut open!
I wrote about this during the Terri Schiavo fiasco. From my piece, “A Painless Death?”
In preparation for this article, I contacted Adamson for more details about the torture she experienced while being dehydrated. She told me about having been operated upon (to remove the bowel obstruction) with inadequate anesthesia when doctors believed she was unconscious: “The agony of going without food was a constant pain that lasted not several hours like my operation did, but several days. You have to endure the physical pain and on top of that you have to endure the emotional pain. Your whole body cries out, “Feed me. I am alive and a person, don’t let me die, for God’s Sake! Somebody feed me.”
Unbelievably, she described being deprived of food and water as “far worse” than experiencing the pain of abdominal surgery. Despite having been on an on an IV saline solution, Adamson still had horrible thirst: “I craved anything to drink. Anything. I obsessively visualized drinking from a huge bottle of orange Gatorade. And I hate orange Gatorade. I did receive lemon flavored mouth swabs to alleviate dryness but they did nothing to slack my desperate thirst.”
By the way, the take away from all this? Many will say these patients are suffering by knowing of their condition, justifying doctors to lethally inject, anesthetize and dehydrate, or kill by harvesting their organs. Indeed, some bioethicists already have. CLICK LIKE IF YOU’RE PRO-LIFE!
P.S: If someone you love is thought to be unconscious, assume they can still hear you. Stories of “unconscious” people recalling all that went on around them are ubiquitous. LifeNews.com Note: Wesley J. Smith, J.D., is a special consultant to the Center for Bioethics and Culture and a bioethics attorney who blogs at Human Exeptionalism
Video: A bookkeeper at one of Mississippi’s top-rated nursing homes plead guilty to stealing more than dollars $100,000 from elderly residents and going on a shopping sprees with the funds. Most states don’t require nursing home administrators to go through background checks. TODAY’s national investigative correspondent Jeff Rossen reports.
Across the United States, nursing-home residents are having their money stolen by people they know: the homes’ bookkeepers and office managers who handle their trust funds and manage their expenses.
It's a crime that's been committed against thousands of nursing-home residents, including Leo Foster’s 89-year-old mother at the Vicksburg Convalescent Center in Vicksburg, Miss.
“It made me feel sick at my stomach,” Leo’s wife Phyllis Foster told TODAY's National Investigative Correspondent Jeff Rossen. “It just didn't dawn on me that someone would be so low as to steal from a vulnerable adult.”
Police learned that a woman named Lee Ray Martin, a business office coordinator at the Vicksburg Convalescent Center and Shady Lawn Health and Rehabilitation homes, had been raiding residents’ trust accounts.
“In (a) three-month period there were 12 or 15 cash withdrawals,” Phyllis Foster said of her mother-in-law’s account. “And we knew that there was something drastically wrong.”
In August, Martin pleaded guilty to 29 counts of exploitation of a vulnerable person and one count of conspiracy. She is accused of stealing more than $100,000 from 83 residents’ trust funds and going on shopping sprees at stores like J.C. Penney, Gap, Walmart and American Eagle. In one instance, Martin bought a pair of designer jeans and expensed them to an elderly resident with no legs.
A USA TODAY investigation into thefts from nursing home trust funds found that more than 100 cases like Martin’s have been prosecuted since 2010.
“What we found was that it is just enormously easy for people to get away with this, even in really good nursing homes,” USA TODAY investigative reporter Peter Eisler told TODAY.
“In most states there are no audit requirements. The people who do the nursing home inspections really aren’t looking close at the books for these trust funds.” Know a scam? Been ripped off? Email Rossen Reports
Officials say there’s another loophole as well: In most states, there are no criminal background checks for nursing-home administrators. Someone who has been convicted for a crime of this nature can relocate to another state and get the same kind of job at another nursing home.
“And you know what I’ve found about embezzlers,” said Mississippi Attorney General Jim Hood. “They’re gonna do it again. ...
“I think we oughta have mandatory background checks for anybody that works in a nursing facility.”
Officials in the long-term care industry say such theft is rare. Martin’s employer fired her, turned her in to police, reimbursed all theft victims and implemented “additional management controls” to prevent fraud.
To protect nursing-home residents from being swindled, their loved ones are encouraged to request and carefully check monthly statements from the facility. It’s also a good idea to ask for actual receipts for any purchases made for loved ones.
If fraud gets detected, here’s some good news: It’s possible to get stolen money back. Nursing homes are required to have insurance that covers this type of theft. Read the official statements in response to Rossen Reports from the Vicksburg Convalescent Center and the American Health Care Association. Have an idea for an upcoming edition of Rossen Reports? Email us.
The administrator at the Vicksburg Convalescent Center knew something was wrong when she saw the receipt: a $90 debit from a resident's trust fund account for a pair of designer jeans.
Of all the elderly residents at the 100-bed nursing home, Amy Brown figured, this one was especially unlikely to spend his savings on pricey pants.
Both of his legs had been amputated.
Brown pored over the trust fund books. There were receipts to back up every charge, so audits had found nothing amiss. But she spotted "receipts for things I knew the residents wouldn't buy" — North Face jackets and Ugg boots, hair dryers and makeup, even a baseball bat. "I felt sick," Brown recalls. MORE: Compare nursing home ratings in your area
Suspicions fell on Lee Martin, an office staffer at the Mississippi facility and an affiliated nursing home across town. Martin was charged in 2012 with billing $101,000 in personal expenses to the trust accounts of 83 residents at the two facilities. She pleaded guilty in August to multiple counts of exploitation of vulnerable adults.
"These (residents) are vulnerable; the nursing home is supposed to take care of them," says Phyllis Foster, 67, whose 89-year-old mother-in-law had funds embezzled by Martin. "I was surprised there wasn't more oversight."
Thousands of residents in U.S. nursing homes and other long-term care institutions for the aged and disabled have had their personal savings raided or mismanaged after relying on the facilities to safeguard the money in special trust fund accounts, a USA TODAY investigation shows. CHAT TRANSCRIPT: Reporter answers your nursing home tweets
These trust funds, which most long-term care providers are required to maintain for residents who request that the facility handle their money, are supposed to work like conventional bank accounts, with accrued interest, regular statements and reliable oversight. But USA TODAY found more than 1,500 recent cases in which nursing homes have been cited by state and federal regulators for mishandling the funds.
In scores of cases, employees or administrators siphoned huge sums of money from trust accounts — hundreds of thousands of dollars in some instances — for everything from shopping and gambling sprees to routine household expenses. In hundreds more cases, facilities failed to pay interest on the funds, could not account for their holdings, or did not carry adequate insurance to protect the money from loss or theft.
The investigation spotlights a growing problem that has caught the attention of state attorneys general, several of whom have beefed up units that investigate financial exploitation in long-term care. Yet the problems continue, and there could be far more thieves who never get caught. WHAT YOU CAN DO: Tips to protect family members' funds
Trust fund cases "can be hard to detect," says Lori Smetanka, head of the National Long-Term Care Ombudsman Resource Center. "It can take a long time before anyone figures out that someone is stealing the money ... I think a lot of cases don't even get picked up."
When a case does come to light, the victimized residents usually get reimbursed because nursing homes are supposed to keep the trust funds insured. But the worry, confusion and emotional damage often linger on.
Officials at the Centers for Medicare and Medicaid Services, the federal agency that regulates almost all of the nation's nearly 16,000 nursing homes, were unavailable to comment due to the federal government shutdown. But many state officials acknowledge that trust fund thefts and mismanagement are a growing problem that gets insufficient attention from both nursing home operators and the agencies that oversee them.
"I do think there's an oversight issue ... There aren't a lot of safeguards in the system," says Ken Moore, a senior assistant attorney general in South Carolina's Medicaid Fraud Control Unit, which has prosecuted at least a dozen trust fund theft cases in recent years.
"A lot of these cases involve an office manager or a business or finance manager, and they're the only ones at the facility who really know how much money is coming in and going out of these accounts, Moore adds. "So these cases can be very difficult to detect — a lot of these people get caught just by happenstance."
In 2010, Moore's office convicted a nursing home business manager who was caught forging checks from the trust fund after she dropped one of the checks in the parking lot. A co-worker found it, triggering an investigation into the theft of $50,000 in residents' funds. Says Moore: "If she hadn't dropped that envelope, I'm not sure she ever would have been caught." WHAT WE FOUND
USA TODAY reviewed thousands of pages of nursing home inspection records, court files and prosecution reports to identify cases of resident trust funds being mismanaged or stolen. The newspaper also studied government reports and interviewed dozens of experts to assess the scope and impact of the problem. Among the findings:
• Since 2010, state and federal inspectors issued more than 1,500 citations to nursing homes for mismanaging trust funds or failing to protect them from theft, according to USA TODAY's analysis of data from the Centers for Medicare and Medicaid Services, the federal agency that regulates nursing homes. Most "deficiencies" involved failing to pay interest, inadequate accounting or not giving residents proper access to their money.
• Among more than 100 prosecutions of employees who stole money from trust funds at long-term care institutions, the newspaper found, more than 30% involved thefts of tens of thousands of dollars or more. Most of the thefts involved funds for multiple residents so thousands of elderly residents and their families were affected. At least 10 thefts exceeded $100,000.
• Lax oversight often allows trust fund thieves to operate for months, even years, without detection. While federal regulations require all nursing homes that participate in Medicare and Medicaid to maintain trust fund accounts, the rules do not mandate any sort of regular, independent audits. Some states have imposed such mandates on their own, but many have not.
• State and federal inspections at nursing homes and other long-term care facilities typically focus on resident health and safety, devoting relatively little attention to the management or security of resident trust funds. USA TODAY surveyed 36 state and local ombudsmen and 32 of them — nearly 90% — said tighter oversight is needed, either through new regulations or better enforcement of existing rules.
"These crimes are clearly crimes of opportunity," the office of Texas Attorney General Greg Abbott said in written responses to questions. "The last thing (nursing home residents) should have to worry about is getting ripped off by the very people they've entrusted with their care."
Nursing home operators note that thefts and mismanagement of trust fund money hurt everyone, including the facilities. When residents' funds are raided, the nursing home is left to repair the damage, make up for any shortage of funds not covered by insurance, and go after the culprit for restitution.
"It doesn't happen very often and when it does, it's tragic," says Greg Crist, senior vice president of the American Health Care Association, the main industry trade group. "There are restrictions on how we collect, hold and disperse these funds. It's very regimented. But even in light of that, there are people who are able to game the system." ANATOMY OF A SCAM
Lee Martin knew exactly how to cover her tracks.
Like many nursing homes, Vicksburg Convalescent keeps trust funds in a single account. A resident's money is deposited there — everything from Social Security and pension checks to money sent by guardians and relatives — and the resident can tap the account to pay for care and incidentals.
And like many nursing homes, a single person — Martin — managed all aspects of the trust account. When residents or their guardians needed to pay for something, Martin issued checks and recorded the receipts. When residents had bills from the nursing home, Martin transferred the funds. When the books needed to be reconciled, Martin took care of that, too.
"Her main job was just to handle the resident trust accounts; she knew how everything worked," says Brown, administrator of the home, which has consistently gotten high ratings for resident care. "She'd been here a long time, the ideal employee. I trusted her totally."
Martin began billing personal purchases to the trust funds in 2010, disguising her receipts as resident expenses and taking reimbursement checks, court records show. She also skimmed money that was to be drawn from residents' funds to pay for their care at the nursing home.
Efforts to reach Martin for comment were unsuccessful, including a request made with her lawyer.
Investigators found that Martin's thefts went on for nearly a year, victimizing residents at both Vicksburg Convalescent and its sister facility, Shady Lawn Health and Rehabilitation, where she also managed trust funds. She issued herself dozens of checks, ranging from just over $100 to upward of $3,000.
Martin targeted residents who paid for their own care or used Medicare. (Residents on Medicaid, the public insurance program for the poor and disabled, carry smaller trust funds.) And she chose residents who "didn't have family (monitoring their finances) or who maybe had a little dementia," Brown says. "She did a really good job of hiding what she was doing." THE OVERSIGHT GAP
Nursing homes often get cited by regulators for mishandling resident trust funds, but it generally isn't the type of oversight that's likely to catch someone stealing.
Annual nursing home "surveys" are governed by federal standards, but the inspections themselves usually are done by state health departments under authority delegated by the Centers for Medicare and Medicaid Services. Reviews of other long-term care facilities, such as those housing people with developmental disabilities, also are generally a state responsibility.
"A lot of the time, these are nurses doing the surveys, so they're geared towards making health assessments. ... There's a lot of ignorance about these (trust) funds," says Patricia McGinnis, executive director of California Advocates for Nursing Home Reform. "They check a box that says there's a trust fund, they look at some documentation. They're not trained in forensic accounting."
Indeed, when it comes to assessing a facility's management of resident funds, many surveyors rely mainly on what they hear from residents — and the nursing homes themselves.
The federal guidance for surveyors dictates that they check with the nursing home management and interview a sampling of residents to confirm that trust accounts are provided and that residents who use them receive interest and regular statements. They verify that facilities have surety bonds to protect their trust accounts and make sure that the accounts of the deceased have been closed properly.
Overseeing the funds and satisfying all the rules "can be a challenge" for many nursing home administrators, says the industry association's Crist.
"Their background and their training is in health care management and health care delivery, not so much in accounting and bookkeeping," Crist says. "They have to place a certain amount of trust in everyone who has their own job to do, right down to the custodian. And that includes (business) office staff."
Catching a determined thief — someone with the skills needed to hide their crimes — often comes down more to luck than due diligence.
Judy Putman's thefts from the resident trust account at the Renfro Health Care Center in Waxahachie, Texas, were discovered after the local bank caught her cashing a check on the account with an endorsement signature that didn't match bank records. After an investigation, she was charged with forging 145 checks, taking more than $350,000 from the funds of 110 residents. She pleaded guilty in 2007 to misapplication of fiduciary property.
THE SCHEME UNRAVELS
Lee Martin got careless.
By the time she was caught, she was skimming increasingly large sums from the resident trust account. She had escaped detection during a partial audit by state surveyors. But the nursing home's operators had noticed that residents who should have had plenty of money were falling behind in paying bills for their care.
"We'd switched to a new computer (accounting) system, so when we saw that some of these accounts had fallen behind, we were trying to drill down, trying to figure out if we were using the system correctly," recalls Brown, the administrator. "But we never suspected what was happening."
One day, Brown went into the business office and noticed a check that Martin had left on the printer — a petty cash check drawn on the trust fund of a resident who had lost both his legs and didn't get out much for shopping. Brown checked the receipt.
"It was for a $90 pair of designer jeans from a store called Buckles, and I thought, 'Why would he want that?' So I started going through books … (and realized) 'Oh my gosh, she wouldn't buy this, he wouldn't buy that.' And it just hit me. I immediately put a hold on everything and called the authorities."
Teresa Mathews, an auditor who worked on the case for the Mississippi attorney general's office, served previously at the state Medicaid agency that does nursing home surveys. At Martin's pre-sentencing hearing, the judge asked for Mathews' view on trust fund thefts:
Q: Is this prevalent around the state, how this scheme works? … It seems like it's an easy scheme for someone (who) has that much trust.
A: Yes, sir.
Q: Isn't there some oversights that should be in place … mandated by the state?
A: Well … each nursing home, it is their responsibility to enforce internal controls and oversights. But, yes, there should be some (more) oversights. AN ABSENCE OF SCRUTINY
Mississippi's oversight of resident trust funds actually is tougher than the norm.
Federal rules do not require nursing homes to audit their resident trust fund accounts. Some states — including Mississippi — do partial or occasional audits during the regular inspection process, and some nursing home operators conduct audits as a matter of company policy. But at many nursing homes, resident trust funds are not subject to any independent accounting.
"Most businesses have regular audits. That should just be part of a nursing home's regular operating costs," says Robyn Grant, head of public policy and advocacy at the National Consumer Voice for Quality Long-Term Care, a residents' advocacy group. Grant says the failure to require audits even when surveys pick up other problems with trust funds is especially troubling, given those errors could be signs of trouble.
In general, the people handling resident trust funds often are among nursing homes' least scrutinized staff. While hands-on caregivers — nurses and nursing aides or assistants — typically must be licensed or certified by the state and able to pass a criminal background check, office staff often are not subject to such requirements.
"I do think there's often a failure to properly oversee the business offices in these facilities," says Moore, the assistant attorney general in South Carolina.
Crist says his organization has put increased emphasis on training nursing home administrators to watch over their business operations. The association also has partnered with the Consumer Financial Protection Bureau to build new safeguards against financial exploitation of nursing home residents.
"The key is awareness," Crist says, noting that this applies not only to nursing home administrators and staff, but also to families and guardians of residents. Residents "should be getting regular statements (for trust accounts), and the more that family members can watch these funds and be aware of what's happening with their loved ones, the better." AFTERMATH: SHATTERED TRUST
Staff and residents at Vicksburg Convalescent had their awareness raised the hard way.
At Lee Martin's pre-sentencing hearing, the courtroom was filled with more than 50 people affected by her crimes — nursing home residents, family members and facility staff.
Lillian Ann Warfield took the stand to talk about the impact on her elderly aunt, who remained upset long after learning that her money was taken. "When I come and visit her, she just cries," Warfield testified. "She wants to know what is happening to her money."
Others in the audience carried photos of loved ones who were among Martin's victims.
Yet some of the most lasting damage may be on the nursing home staff itself.
"The whole thing was devastating; it took a toll on everyone," Brown says. "We have a really good building, a really strong, close staff, and we all work hard to do the best job we can, so this was just a slap in the face to everyone."
To this day, Brown hasn't been able to bring herself to hire another trust account manager; she's taken on that role herself.
"I have to see every (account) detail," she says. "There are so many major things you deal with at a nursing home, so many things need attention, and this (trust account) just seemed more minor. But it isn't. Administrators have to realize that you're responsible for that trust account. You really have to oversee it." Have a story or question on this to share with reporter Pete Eisler? Tweet him @ByPeterEisler Contributing: Michael Auslen, Morgan Fecto, John Kelly
Aging AIDS population causes new challenges for health care system
By Justine McDaniel - McClatchy Washington Bureau
WASHINGTON --
Half of the HIV/AIDS population in the United States will be 50 or older by 2015, a pivotal development that brings new challenges to the treatment and prevention of the disease, experts told a congressional panel Wednesday.
Drug resistance, other diseases, high rates of depression and a lack of prevention, screening and early diagnosis could all pose significant problems as the population of Americans with HIV or AIDS ages, they said during a hearing of the Senate Special Committee on Aging.
As research for a cure for AIDS continues, there is a vital need to examine the aging AIDS population, since any drug or vaccine must now work on an older population, said Sen. Bill Nelson, D-Fla., the committee’s chairman.
“The so-called graying of the population comes with the need to refocus our work on these new challenges,” Nelson said.
Older Americans tend to take fewer precautions against HIV, get diagnosed later and respond less to antiretroviral therapy, said Dr. Ronald O. Valdiserri, a top infectious diseases official with the Department of Health and Human Services.
Older people with HIV are more likely to develop cardiovascular disease, cancer, and liver and kidney disease, as well as depression, the experts said.
These factors result in a need for increased funding for prevention, treatment and biomedical research, they said.
Even though AIDS patients are getting older, many are still under 65, meaning they are not eligible for Medicare or other services funded through the Older Americans Act, said Daniel Tietz, executive director of the AIDS Community Research Initiative of America.
Tietz called for more funding for the Centers for Disease Control and Prevention’s HIV initiatives, as well as the federal Ryan White HIV/AIDS program, which provides primary care and support to patients who can’t afford it independently.
The Affordable Care Act, the 2010 health care law, is critical in bringing care to older HIV-positive adults, Tietz said. By expanding Medicaid, eliminating co-payments for services like HIV testing and providing HIV medication coverage, the health care act will improve care available to HIV/AIDS patients, witnesses said.
Tietz also said better screening is needed, saying HIV testing should become as common as blood-pressure readings.
Other experts echoed the call for better funding for HIV-related programs.
With so many different organizations working against HIV/AIDS, the fight against the disease must become “an integrated effort,” said Carolyn L. Massey, who was diagnosed with AIDS in 1994.
“The aging adults being diagnosed with and living with HIV, if left unattended, is one of the next big health challenges we will face as a nation,” Massey told the committee.