Wednesday, July 24, 2013

Va. guardianship case tests rights of disabled

   

Va. guardianship case tests rights of disabled



 


The Associated Press


A guardianship case for a Virginia woman with Down syndrome is testing the rights of adults with disabilities to choose how they live.
The Washington Post reports (http://wapo.st/12cgGZa ) that 29-year-old Margaret Jean "Jenny" Hatch has been fighting for nearly a year for the right to move in with friends who employed her at their thrift shop. Her parents want her to remain in a group home.
Hatch learned to read at the age of 6, has volunteered on Republican political campaigns and held a part-time job at the thrift shop for five years. She also has an IQ of 52 and tends to shower affection on strangers as well as friends.
The case, which will continue on July 29, has captured the attention of advocacy groups and Hampton Roads residents, who have turned the phrase "Justice for Jenny" into a mantra. For many, the legal fight is about not just who Hatch is but also whom she represents: anyone born with an intellectual disability or who ends up with one, through either age or mishap.
"There is a default assumption that people with intellectual disabilities and people with mental illness need people to make decisions for them, that they can't, with aid, fend for themselves. Which just isn't true," said Jennifer Mathis of the Bazelon Center for Mental Health Law, one of several organizations that have expressed interest in the case to the court.
Hatch moved in with Kelly Morris and her fiance, Jim Talbert, after a family friend she was staying with lost her apartment. Hatch's father, Richard Hatch, lives in North Carolina and told Hatch's case manager he could not give his daughter the level of care she needed, court records show. Her mother, Julia Ross, and stepfather, Richard Ross, said in the case manager's report that Hatch had a contentious relationship with her mother and couldn't live in the home.
Both July Ross and Richard Hatch declined to be interviewed.
While living with Morris and Talbert in 2012, the couple learned Hatch had a better shot of receiving a Medicaid waiver, which would entitle her to in-home and community-based services, if she were homeless. So in May 2012, they convinced her to move into a group home where she stayed until August, when the Medicaid waiver was approved and she moved back in with the couple.
Two days later, the Rosses filed for guardianship. A Newport News judge placed Hatch under temporary guardianship and she has rotated between group homes and living with the Rosses.
The Rosses want the right to decide, among other things, she Hatch lives, whom she sees and what medical treatment she receives.
Julia Ross told the case manager that her daughter "lies, causes confusion, is inappropriate behaving with men, contacts neighbors relentlessly, and is obsessed with others who are nice to her," according to a report filed with the court.
Jonathan Martinis, one of Hatch's attorneys, said he hopes that this case is the "rock that starts the avalanche, that it changes the conversation" about guardianship. The focus should be on what a person can do, not on what they can't, he said.
Newport News City Council member Patricia Woodbury said she hopes to testify on Hatch's behalf when the case resumes later this month.
"I have people all the time ask me, 'What's happening with Jenny? Tell her I love her,' " said Woodbury, a former high school psychologist with a doctorate in the subject.
"Do I say that Jenny can make all the decisions without some support?" Woodbury asked. "No, she needs some support. But she can be reasoned with."
Talbert and Morris said that they don't think that Hatch needs a guardian but that if the court determines she does, they will fill that role.
"It's about her right to choice," Morris said. "If she chooses, I want to live with Jim and Kelly and then, six months down the line, she decides 'I want to live in an apartment,' that is fine. If Jenny wanted to live in a group home and made that choice on her own, we wouldn't be where we're at."
In a videotaped interview that Martinis conducted with Hatch at The Washington Post's request, he asked her how she felt about the group home. She said she missed her friends and wanted to be back to work at the thrift store.
When Martinis asked what, if anything, she wanted people to know about her.
"I make my own decisions," she said in a stern voice. "Not you."

Information from: The Washington Post, http://www.washingtonpost.com

Read more here: http://www.miamiherald.com/2013/07/22/3514414/va-guardianship-case-tests-rights.html#storylink=cpy

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